Parents of children with Autism Spectrum Disorder (ASD) and Pervasive Developmental Disorder (PDD) benefit from support when navigating and dealing with the community, the school system, and society at large. (Not only do we need to advocate for our children, we must learn to care for ourselves.) Some suggestions for supporting these requirements and the needs of children with ASD/PDD are listed below.
Supporting Your Needs:
Parents who have children with ASD/PDD must refrain from self-blame.
(The insensitive comments made by others, although potentially hurtful and annoying, are not a reflection on you. These remarks stem from insecurities and/or lack of information. Help to educate others by sharing our insights. Positive words will not only help to inform but will reflect favorably on you and your child.)
Don?t be afraid to ask questions.
Speak with reliable individuals, ask for their suggestions, and gather information from sources you trust.
Although difficult, you must make time for yourself! You cannot give if your own resources are depleted. Carve out small spaces of time to care for and nurture yourself!
Supporting Children with ASD:
Each child?s needs are unique and must be recognized as integral to his or her complete development.
The type of educational setting that is most beneficial depends on the age and specific needs of your child.
A creative and flexible approach seems to prove beneficial as your child?s needs will fluctuate depending on age, severity of autism, changes within the environment (home and school), and physiological changes.
Within the course of a day, the child with autism will experience a wide range of situations that require supportive guidance. Be prepared for the unexpected. Remember when all else fails, laugh!
For ongoing support with your child?s education, social skill development is critical for academic and life-long success.
Children with autism are often especially sensitive and respond well to patience and compassion when acquiring appropriate social skills. The relationship between the family, school, and community is critical.
In becoming an advocate for our child, information is essential. Start by caring for yourself. Place your needs and your child?s well-being first. Access written materials, articles, books on autism, and the many informative web-sites that provide up-to-date research and information regarding autism. Speak with health care providers, other parents with children with autism, your child?s caregivers and teachers, and become involved in support groups. Trust in your intuition and your ability to nurture your child.
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